The rest of Aleigha's story ...

Aleigha's dad sent me an update from last November till now of Aleigha's story.

In November 07 Aleigha relapsed. Her Drs. told us that this time the cancer would take her. That hit us hard, but Aleigha she looked at her Dr. and told him he didnt know what he was talking about, and preceded to tell him she would beat it this time too. Aleigha was put on an experimental clinical trial in Nov. 07. She goes to Riley ever 21 days for one day to start each round of chemo. She has 3 chemo meds to take. The first one is only on the first day. She gets that thru her PIC line and then the other are for 5 days and they are oral chemos. Day one is at Riley and days 2 thru 5 are at home. She cant stand the taste of them but takes them anyway. Then once a week we go to Lutheran Hospital here in Fort Wayne for lab work and check ups.
It was very hard to hear that the cancer would eventually take her. We had long talks and decided to live with no regrets. That is to do what ever Aleigha wants to do. That way we never have the regrets of not doing something. We also let everyone know that Aleigha was in charge and we will fight this with her as long as she is able.
The scans started to show small shrinkage in each of the three hot spots. Then in June the scans stayed the same no changes. That was good that they stopped growing and are now stable. In August 08 we went to teh PPB family get together and conference in Bloomington Minnesota and met other PPB families and the top Drs. in the study and treatment of PPB. Aleigha is patient 203 in the world and now there are only 254 cases in the world. We learned both good and bad news, and made connections with the other families and we keep in touch with them. The bad news that we leaarned was that no one with stage 3 PPB has survived after relapsing. We learned that our Drs. are doing an awesome job, and we believe Aleigha will survive this and pave the way for others to beat it too. The trial we are on ends in November 08. We will discuss with her Drs. what the next best coarse will be and continue on that path.
Aleigha has been just amazing through all of this and has maintained a positive strong attitude that she will win. Aleigha is our Hero and has many followers on her web-site that encourage her and the rest of the family to fight on. Thanks go out to God, Aleighas Power of Pink, and all thoughs who pray for her.

Daddy of the Pink Princess


I'll leave you with that and this final image from my photo shoot with Aleigha. I just had her look out the window, but the way she's looking up in this one almost looks like she's having her own conversation with God while I'm snapping away. I love it.

For those of you who are following this blog and Aleigha's story, I encourage you to keep visiting her site and leave her a message of encouragement now and then. After meeting this little girl, I know if anyone can beat this, she will :)